ABSTRACT
Aims: The COVID-19 pandemic forced a trade-off between the interests of all versus those of individuals. Therefore, many healthcare organisations applied visiting restrictions, also for dying patients.Our aim was to explore, in an international context, if visiting restrictions for dying patients had an impact on the quality of life of healthcare professionals. Method(s): From April 2020 to June 2021, an open online survey was conducted among healthcare professionals in 14 countries;Belgium, Czech Republic, Norway, Slovenia, the Netherlands, United Kingdom, Argentina, Brazil, Chile, Colombia, El Salvador, Uruguay, Indonesia and Japan. The survey consisted of validated and purposively designed measures of perceived quality of care (CODE) and staff QoL. Data were analysed descriptively and inferentially, with regression analysis conducted for all countries, and the results pooled and analysed in a multilevel analysis using Cochrane Review Manager. Result(s): Among 2925 respondents (mean age 42 years), 2385 (81.8%) were female, 1601 (54.9%) were nursing staff, and 1560 (53.3%) worked in hospitals. Approximately half of the patients reported on were men (n = 1470, 50.4%) and 1202 (41.4%) were COVID-19 positive. In all countries, the majority of respondents rated medical and nursing care for the patient as sufficient (n = 2468, 84.6%, and n = 2426, 83.2%, respectively). In 1559 cases (53.9%), visitors were allowed with limitations during the last 2 days of the patient's life, and in 468 cases (16.2%) no visits were allowed at all. Most respondents rated their QoL during the past week as 4 or higher out of 7. Mean QoL was lowest in Brazil (M 3.94, SD 1.34) and highest in Indonesia (M 5.80, SD 1.21). Regression analyses showed that no or limited visiting in the last days of life, was associated with lower QoL scores of healthcare professionals compared with those who reported that visiting was unrestricted (OR 0.63, 95%CI 0.48-0.83, p<0.001). Heterogeneity between countries was high. Conclusion(s): Our results suggest that visiting restrictions are associated with QoL of healthcare professionals. It may be that restrictions resulted in staff feeling unable to provide the desired level of care, and in turn affected their role perception and QoL.
ABSTRACT
The COVID-19 pandemic is a serious threat to public health. Latin American structural conditions are a propitious place for the spread of COVID-19. Argentina, Brazil, Chile, Colombia, Mexico and Peru are the countries with the most deaths on the continent. We aimed to explore the characteristics of EoL care practices as provided during the pandemic in 7 Latin American countries (Argentina, Brasil, Chile, Colombia, El Salvador, Perú, Uruguay) and the experiences from relatives and healthcare providers. Methods: Observational study of a convenience sample of people who have recently experienced the death of either a relative or a patient died or not from COVID-19 using 2 rounds of questionnaire surveys, with additional deep-interviews. Social Determinants of Health, working conditions, and QoL were assesed. Primary outcome: a descriptive assessment of the characteristics of EoL care during the pandemic, from the experience of relatives and HCP. Preliminary Results:1430 questionnaires completed until now (726 relatives/ 704 HCP) In-depth interviews analysis in progress. Most of the relatives perceived their loved ones were treated with respect and dignity during the last days of life by doctors 85% and nurses 81 % most of time. HCP rated their QoL average 5 (1 Very poor, 7 Excellent). Conclusion: Provision of best person-centred care for dying patients requires understanding of cross-cultural experiences of dying and bereavement. We provided international and multidimensional perspectives of the impact of this unprecedented pandemic from 7 Latin American countries.